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Help us at here at CFUCDF continue Connecting Families affected by Urea Cycle Disorders to the programs and resources they need throughout the year.
Urea Cycle Disorders cause elevated ammonia levels in the blood which can result in brain damage, coma, and death. Because of an inability of the liver to properly process nitrogen compounds via protein metabolism, UCD’s can have devastating impacts on lives. All too often those affected do not survive, especially newborn babies who go undiagnosed. For those who do survive this terrible rare disease, they live with the prospect that the next elevated ammonia episode may take their life.
There is currently no cure.
With your help we can continue providing conferences that give those affected the access to geneticists, dieticians, and various speakers at no charge to them. Education, awareness, support, resources, and programs for those affected builds the bridges between all of us producing improved quality of life.
CFUCDF hosts conferences throughout the year and we are planning more conferences for 2018. CFUCDF is launching a UCD Life Enrichment Program available early 2018. This is a rare opportunity for the UCD community (for details click the tab on the menu). With your donations and financial support we here at CFUCDF can continue striving to bring much needed resources and programs for affected families into 2018.
Please consider helping us to help others with UCD’s!
Your gifts and donations make possible the education, awareness, support, programs, and regional events to patients and families to receive much needed support.
Over the years we have learned this . . .
“People don’t care how much you know, until they know how much you care”.
With your generous support you can show how much you care. Together we can meet those needs and bring more hope to friends and family members affected by a UCD.
Please support those with Urea Cycle Disorders by giving today!
Thank you and God bless,
-Connecting Families Urea Cycle Disorders Foundation