Come and join us in Houston, Texas for another chance to Connect, Share, and Learn. We are so excited to bring you another UCD Meetup with the help of our awesome friends at Global Genes. We have 3 speakers scheduled for this event and it’s going to be great for all of us to finally … Continue reading “UCD Meetup in Houston, Texas Nov 3rd and 4th 2017”
We here at Connecting Families UCD Foundation are so pleased and thankful that our Seattle event was a great success! Thank you to all the Families that were able to attend and thank you to our sponsors and donors for helping us come together for some much needed “bridge-building” between our UCD families. We were … Continue reading ““In the Works” . . .”
UCD Meetup 2017 Please Join Us for this Educational Meetup with Special Guest Speakers Welcome Dinner Friday, May 5, 2017 Educational Meeting Saturday, May 6, 2017 Grand Hyatt Seattle 721 Pine Street, Seattle WA 98101 Click HERE for more information and to register When registering please be sure to register each attendee. Thank you in … Continue reading “Connecting Families UCD Foundation May 5th-6th 2017 Seattle Event”
Thanks to all our friends and families who supported our fundraiser at Mulligan’s. A special thanks to the Press Enterprise for their amazing article http://www.pe.com/articles/robyn-816375-otc-ariella.html?page=1 A very warm thank you to all our local merchants who donated prizes for our participants. We are excited and looking forward to our upcoming event in Seattle. Please keep … Continue reading “Mulligan’s Fundraiser Update”
Having a hard time receiving accommodations for your child with school administrators? Want to know more about IEP's and 504's?
Connecting Families Urea Cycle Disorders Foundation is excited to bring the UCD community a podcast series on Understanding IEP’s and 504’s for families that may need help in understanding your child’s rights to accommodations in public school under Federal Law.
The 'Understanding IEP’s and 504’s' series will be running over the next several weeks with a new session released every week. If you are currently experiencing challenges with getting your child’s needs met under IEP’s and 504’, you won’t want to miss this series.
The first session will discuss: • IEP’s and the various categories • IDEA • CFR’s • OHI’s • Child Find • FAPE
If you listen to our podcast and find it helpful, be sure to let us know by leaving a comment under the Contact Us tab on the main menu. We want to thank our friends and donors for helping us put this together and we wish to thank our Legal Advisory Board Member Piper Paul for her tremendous legal expertise. And, a special thanks to Tisha, the school principle speaking with Piper in the podcast, who gave her time to help our families with this series.
Another great meeting with Congressman Dan Newhouse to discuss continued support for Newborn Screening for Urea Cycle Disorders. We also received his support to help us move forward with adding an ammonia blood draw to current NBS for UCD’s. It was great meeting with him and he really was engaged with us by asking a lot of questions about UCD’s. We are so grateful for having established new relationships with these members of congress today and are hopeful in having these allies in our UCD Community 🦓🦓🦓 ... Click Here To See MoreSee Less