Connecting Families UCD Foundation

1 week ago

FYI Friday:

UCDtalk has just posted the latest podcast in the series, "Understanding IEP's and 504's with Piper and Tisha." Part 8 answers tough questions by parents about their UCD children who attend public school such as:

• Is the school supposed to inform you immediately when they suspect an elevated ammonia in your child?

• Is the school supposed to keep you informed when they know of other children who are attending school with the flu or other sickness in order to keep your child from being exposed?

• What if your child had to miss school because of illness, (either their own or due to other students), is the school to provide services for your child when they are expected to be absent or hospitalized?

• Is it true that your child is entitled to behavioral evaluations ONLY IF they are aggressive or violent?

• What is an FBA?
• What is a BCBA?
• What is an FBC?
• What is a BIP?

We hope this episode answers more of your questions about IEP's and 504's.

Listen directly from our website here:
www.ucdfamily.org/ucdtalk/

Or listen on Soundcloud here:
soundcloud.com/u…/understanding-ieps-and-504s-part-8

Have a blessed day,
CFUCDF ... Click Here To See MoreSee Less

UCDtalk

ucdfamily.org

Welcome to UCDtalk Connecting Families UCD Foundation is so excited to bring you our new podcasts presenting various UCD topics. Our podcasts are interviews with various professionals in their resp&he...

Connecting Families UCD Foundation

2 weeks ago

UCDtalk has just released a new podcast- Understanding IEP’s and 504’s Part 7

Protein restricted diets are a critical part of treatments for Urea Cycle Disorder patients (especially our children). For part 7 this week we answer questions to some challenging situations for parents of UCD children attending public school such as . . .

• "Do parents have a right to know if their Urea Cycle Disorder child is eating their lunch at school?"
• "Does the school have an obligation to ensure your UCD child has been eating their lunch and eating only what they are prescribed by physician’s orders," and
• "Is your UCD child 'lunch swapping' at school?"

Some of the other topics today include

• Why it's important to 'keep your cool' at an IEP or 504 meeting, and
• What are SMART goals and why are they important

Thank you for tuning in and we hope you find these podcasts useful.Have any suggestions for future podcasts regarding Urea Cycle Disorders? Let us know by either email at robin@ucdfamily.org or go to www.ucdfamily.org/contact-us/ and tell us what you think.

Listen here:http://www.ucdfamily.org/ucdtalk/
OR listen here: soundcloud.com/u…/understanding-ieps-and-504s-part-7

We love you all,
CFUCDF ... Click Here To See MoreSee Less

UCDtalk

ucdfamily.org

Welcome to UCDtalk Connecting Families UCD Foundation is so excited to bring you our new podcasts presenting various UCD topics. Our podcasts are interviews with various professionals in their resp&he...