Prayer Requests

CallUs:

918-490-3055

UCD Life Enrichment Program

UCD Life Enrichment Program

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We have scholarships available for learning opportunities AND summer cooling equipment awards! Click the CFUCDF Life Enrichment Program tab above.

UCD Kid’s ROCK!

UCD Kid’s ROCK!

Did you know that CFUCDF hosted the first camp for families affected by Urea Cycle Disorders called UCD Kid's Camp 2018 this past April? If you have a UCD and would like to have your child attend this rare camp, join our FB group. This FB group is exclusively for those with a UCD to get connected with others for answers to UCD questions and receive updates about CFUCDF events and programs.

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Get in on the conversation, we would love to hear from you!

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You can find us on FB and Twitter by clicking the avatars below.

Past Event Resources

UNABLE TO ATTEND OUR LAST EVENT?

This page is for posting the information from speakers and presenters at our events. In case you weren’t able to attend you can still benefit from the information.

Thank you to all who were able to attend. We look forward to seeing more new faces at future events.

Love,
Robin and Michael Deleon
CFUCDF
 
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FOR: 504’s and IEP’s
Information about your rights and accommodations under federal law for your child in public schools (USA only). Please read her incredibly helpful presentation which is available below in blue.

Piper a. Paul, Esq. (Click the link in blue below to receive her Powerpoint on 504’s and IEP’s below)
You can see Piper A. Paul, Esq. on the homepage scroll called In Recognition, or under Board of Directors tab.

Thank you so very much to Piper Paul for taking the time to put this together for our UCD families

For her powerpoint click here:
How to Effectively Advocate for Accommodations_P. Paul.5.1.2017

 

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