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Past Event Resources

 

UNABLE TO ATTEND OUR LAST EVENT?

That’s ok, we took notes! We will be posting presentations and any other documentation from the speakers at our events right here.

We hope to see you at the next one!

Connecting Families Urea Cycle Disorders Foundation

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FOR: Navigating 504’s and IEP’s Powerpoint

prepared by Piper A, Paul, esq. specializing in Students with Disabilities

This powerpoint contains information about your rights to accommodations under federal law for your child in a public school.

For her complete powerpoint click here:
How to Effectively Advocate for Accommodations_P. Paul.5.1.2017

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FOR: UCD Kids Camp-Seattle Video Presentation
by Dr. Jose A. Camacho, metabolic geneticist specializing in Urea Cycle Disorders

The entire presentation is broken down into 4 video’s of approx. 15 minutes each

A Urea Cycle Disorder Presentation: Video #1

A Urea Cycle Disorder Presentation: Video #2

A Urea Cycle Disorder Presentation: Video #3

A Urea Cycle Disorder Presentation: Video #4