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Board of Directors

Co-Founder/COO/Urea Cycle Disorder Dad

Michael Deleon is the husband of Robin Deleon and the father of daughter Ariella. Both he and Robin have been married for 19 years. He has been a fierce supporter alongside his wife and daughter in the fight against their rare disease. As a husband and father of urea cycle disorder family members, he has lived through these struggles and shares his perspective with other parents and their families. He fulfills the role of Chief Operating Officer in his time at home when not at his full time job. He works for Space X in Hawthorne, California.

When he’s not building rockets he’s home and cherishes each and every day he spends with his family. As a man of faith, and witnessing firsthand the storms brought by urea cycle disorders, he feels called to leave no family behind, determined to bring families together as if they were his own.