Mindy Mooney lives in Western Maryland with her husband Mark and two boys, Connor and Corrigan. In 2008, Corrigan was diagnosed with Citrullinemia, a Urea Cycle Disorder. Corrigan eventually received a transplant and is on a new road with new challenges. Mindy is a experienced mom who can communicate powerfully as a rare disease advocate. Her focus will range from family support to social networking.
Her vast knowledge and exceptional writing skills are her trademark. We are so honored and happy to have her with us. We know she will be able to connect with so many in our community as she and her family continue the Urea Cycle Disorder journey.