Prayer Requests

CallUs:

918-490-3055

CFUCDF Life Enrichment Program

Página en español aquí

 

 

Connecting Families Urea Cycle Disorders Foundation (CFUCDF) is excited to announce an
opportunity for those with Urea Cycle Disorders to receive up to a $2,500 scholarship for Life
Enrichment learning opportunities AND NOW summer heat cooling items for our UCD kiddo’s.

================================================================================

Update June 2018: $150 Life Enrichment awards for summer cooling items for UCD Kiddo’s

The UCD Life Enrichment Program is now taking applications for a $150 award to families with UCD children that would benefit from a cooling vest (or equivalent) for summer 2018. Keeping our UCD Kids cool during the summer months can be difficult and we have opened up the program to include cooling items. This award will be for 1 person per family with a UCD, e.g. if you have more than 1 affected by a UCD, each person qualifies for their own $150 dollar award to help offset the cost for cooling items. We have modified the application in order to identify whether you are applying for the learning scholarship, or an equipment award. Please indicate this on the form and if the cost of your item/s of choice are equal or less than the award amount, please send us a link to the item/s along with your application, and upon approval of your application, we will get them ordered and paid for. If you wish to purchase an item which exceeds the award amount, we will send you the $150 award upon showing the proof of payment for the item up front. 

Note: This award will be available for the duration of summer 2018 or until funds are no longer available, whichever comes first. Be sure to apply right away to take advantage of this opportunity!

================================================================================

Is there anything you would like to know about and learn? How about a cooking class to learn how to prepare low protein meals? How about becoming a Certified Phlebotomy Tech to learn how to draw a proper ammonia sample? Have you considered any training for either a first time or better job? Maybe you prefer to speak with a Professional Counselor about learning psychological or social coping skills to help understand the impacts Urea Cycle Disorders have on our emotional and mental health?

“What can you or your loved one learn that would enrich your lives”?

 

“Would you or your loved one like to talk with a counselor to better understand the daily emotional and mental challenges of living with a UCD?

 

“Would you like to receive some more training to receive better opportunities at work by learning new

skills”?

 

“What drives you”?

 

“What are you passionate about”?

 

 

Medicines are getting better, quality of life is improving, but there is still work to be done. Urea Cycle Disorders still occur in approx. 1 per 25,000 people. UCD’s are considered a rare disease and there is currently no cure. Connecting Families UCD Foundation wants to reach those who have a passion to learn things that will enrich UCD lives.

Here are the rules:
1. These scholarships are first and foremost for those patients directly affected by a urea
cycle disorder. In certain instances where some families have an affected family member who may not
be able to benefit directly from this themselves (due to physical or medical limitations) there
will be an allowance for parents of those loved ones to receive the award providing it directly
benefits the life enrichment of the loved one with the UCD. All applications are reviewed by a
select committee and determinations are made on a case by case basis.

2. Submit an application along with required forms for consideration at www.ucdfamily.org/
HUCDLEP. Or visit the website and click the HUCD Life Enrichment tab on the menu.

3. Maximum scholarship amount is $2,500.00USD per applicant, with a maximum of
$50,000.00USD to be distributed. Minimum of 20 people will receive scholarships.

4. Opportunities are open to patients for college, trade school, vocational school, or other
courses such as culinary arts, phlebotomy, painting, computer skills, karate, etc., OR for the use
of counseling sessions to learn skills in becoming better personally equipped in
understanding the psychological/social challenges from having a Urea Cycle Disorder.

5. Need to be 18 years old (or must have parent/guardian signature for classes you wish to
participate in if underage). Must submit an application (located on website) to CFUCDF along with
required Physician Diagnosis Verification Form (downloadable on website). Application and Physician
form will be accessible January 1, 2018).

6. Must have your physician (or any  member of your metabolic team) sign Urea Cycle Disorder
Diagnosis/Verification Form. It is downloadable as a PDF on the Life Enrichment web page.

UCD’s affect those around the world and Connecting Families UCD Foundation strives to bring help to
those in other countries as well. The CFUCDF Life Enrichment Program will also be available to those who have a Urea Cycle Disorder who live OUTSIDE THE US!

The entire application process along with required forms is available at www.ucdfamily.org

We can’t wait to see how this program helps families achieve

brighter futures in 2018.