Connecting Families ‘IS’ Connecting The UCD Community


Won’t you join us?


Connecting Families Urea Cycle Disorders Foundation is so excited to announce our UCD Meetup this Fall 2019. We have a full, fun-filled weekend of sharing, connecting, and learning about UCD’s. This weekend is for coming together to become better equipped personally, and you will leave knowing that you’ve gained powerful tools for helping others in your UCD community through their challenges too. We will have several speakers from their respective fields providing professional insight, information, and answering questions. Our purpose is to build new relationships in the UCD community by bringing those with Urea Cycle Disorders together, empowering all patients and families with the tools to more successfully navigate this rare disease.

Won’t you consider joining us for a rare opportunity to connect, share, and learn alongside other patients and families who also live with Urea Cycle Disorders just like you do?

We will be offering travel stipends this year but they are limited so register and apply soon!


What can you expect?


It all starts at 6PM with our Welcome Dinner on Friday evening October 4th.

Breakfast will be served at 8 AM Saturday morning with our Meetup beginning at 9 AM

1 night DoubleTree by Hilton hotel stay

Friday Dinner, Saturday Breakfast, Lunch, (and if you attend the cooking class afterwards), Dinner Saturday night as well.

Ever cooked a meal with another UCD family? You’ll get that opportunity right after our UCD Meetup. Horizon Pharma will be offering a cooking class hosted by professional chefs to teach you how to prepare your own low-pro recipes. We will all make a meal and eat our creations together for dinner.

Save The Date: October 4-5, 2019


Where: Salt Lake City, Utah