Horizon Pharma wants to ensure that people in the southeast who are living with or caring for somebody with a urea cycle disorder (UCDs) are aware of the below resources. Our thoughts are with everybody who is preparing for Hurricane Florence.
Medicine Support For people currently prescribed a Horizon Pharma medicine, please contact our patient support team with any questions, concerns or needs related to our medicine for UCDs. The phone number is: 1-855-823-7878.
NORD Emergency Relief Programs The National Organization for Rare Disorders, Inc. (NORD) has Emergency Relief Fund programs in place for people living with rare diseases, including UCDs. These programs are administered, implemented and executed by NORD pursuant to their own criteria. The following is NORD contact information with more information on its program for people living with UCDs: 855-201-5139 or UCDassist@rarediseases.org
For those looking to provide support, Horizon Pharma is currently supporting the disaster response efforts of Americares, a health-focused relief organization that provides emergency medicine and supplies. You can help with your own donation today by using this link: bit.ly/2QnU43r... Click Here To See MoreSee Less
Do you need genetic testing done to confirm your UCD diagnosis and were told it's not covered, and you can't afford it outright?
NORD (National Organization for Rare Disorders) is administering a patient assistance program of financial support to ensure patients who need the tests to confirm the UCD diagnosis receive them without hesitation or concern about payment.
Check out the flyer for more information, it's up on our Resources page here:
As a part of our ongoing partnership w/ @Americares and in preparation for #HurricaneFlorence, our employees are helping raise funds to support the delivery of emergency medical supplies & to help restore healthcare access. More info here: https://t.co/HCISqdL5zj #GetReadyNow